I'm discouraged by a conversation with my supervisor today. I had been working from home 1-2 days per month on days when Mom or I had doctor's appointments or other things going on. My supervisor put the kibosh on that today. I had gone in to meet with her to discuss strategies for balancing work with caregiving. Basically I walked out of the meeting with no strategies, only discouragement. But then I shouldn't have expected anything different. Our society doesn't condone anyone who departs from the work-until-you-die, total company devotion ethic. There is no support for caregivers, not only caregivers of AD patients, but caregivers in general. I take that back. I had one supervisor who was extremely supportive during my father's illness and death. But my latest job has had zero tolerance for anything outside the norm, personal illness or otherwise. Here's the clincher; my supervisor insinuated that if I can't balance my job with caregiving maybe I should think about placement for Mom. I was shocked. Isn't that illegal for her to say? I'm meeting with HR on Wednesday, but I really don't put much stock into that either. So I'm stepping up my job search and praying for some sort of guidance with this. I'd quite my job in a heartbeat if I could afford it, but I can't. Am I wrong to feel resentful and unsupported?
Mom was confused and emotional tonight when I arrived home from work. She calmed down after a few minutes. She didn't know where I was for the last 10.5 hours. Her caregiver had left out some snacks for her to munch on. She told Joyce that she was saving them for me. God, I hate this disease. Oh, and remember all the problems with diarrhea? Now we have the opposite problem thanks to the Tylenol with codeine. I gave Mom some senokot tonight. Hopefully it will help and not cause the other problem. But she is frustrated cuz she can feel something but it won't budge when she tries to go.
Happy New Year everyone!